Rowling CARE

A register for people in Scotland with a neurological condition, and their carers, to help research and find out about opportunities to take part in studies and trials.

Condition(s)

  • All neurodegenerative conditions & carers
  • Stroke due to brain haemorrhage
  • Cognitive disorders
  • Motor neurone disease
  • Multiple sclerosis
  • Neuroinflammatory disorders
  • Parkinson’s & movement disorders

Project type

  • Understanding the condition

About the project

Rowling-CARE is an electronic record of healthcare data that allows us to conduct research, identify research projects that are relevant to individuals, and to identify people who can help shape future research. For example, this information includes how your condition affects you, when you were diagnosed, what investigations were carried out and current management.

Why is it important for researchers?

Every year at the Anne Rowling Clinic we make thousands of clinical contacts with people who have a neurological condition. We strive to deliver the best care possible, and in the delivery of that routine care we generate a wealth of data about the people we see and the conditions they have.

This data is a rich source of information for research. By comparing relevant healthcare data from many people, our University and NHS researchers can study the variation in these conditions in great detail. We can determine patterns and clues as to how to improve care and ultimately develop personalised medicines and clinical trials.

How is it useful for you?

If you are on the Rowling CARE register, and have given us your permission, we will be able to contact you when we have a research project or drug trial that you might be interested in and eligible for. You will then be among the first to hear about the new research or trial, and have the opportunity to sign up.

Find out more and sign-up

Please visit the Rowling CARE website at rowling-care.org.uk to find out more and sign-up.

If you have any questions, or would like a paper sign-up form, please contact us.

Funder(s)

The Anne Rowling Regenerative Neurology Clinic

Publication(s)

N/A

Status

Recruiting now

Contact

Rowling CARE team
info@rowling-care.org.uk
0131 465-9517

Eligibility criteria

Anyone living in Scotland who has a neurological condition, or cares for someone who does.

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